Topamax

I know I've spent much time posting about Maura's downward spiral...and when we were rehospitalized, things weren't looking so great. She was having difficulty breathing without help, the seizures were overcoming her 5,6, 7 times a night. I wondered if I'd ever see an end in sight.



The doctors had mentioned adding a third AED: Topamax. They were very hesitant to do so and kept dragging their feet on it, but I pushed and prodded until they finally relented and did it. Maura is coming to life! She's having restful nights without seizures. She's having great awake periods, and she's just absolutely thriving! I'm so glad they finally did it! I started to wonder if I'd ever see a normal baby through all of this!



She's still a cuddle bug though!

While we still reside at CHOP, it's looking more and more like Maura might come home soon! My fingers are crossed and prayers are sent that she can finally come home and be with us early this week!