Back to CHOP!

Well, I'm sad to report that our homecoming from CHOP was short lived. Saturday night, I woke up to nurse Maura, and when we were done, I had put her down for a mere moment to use the bathroom when she let out a blood curdling scream. I couldn't determine whether or not it was a seizure, but the behavior was not typical of Maura. From there on out, there were two more seizure episodes and Maura turned blue on us on Sunday afternoon. We knew we had to take her back.



After a bit of a debacle in getting her to a safe facility to be transferred to CHOP, we finally made it to CHOP on Sunday night. She suffered a few more small episodes on Sunday night, and then two more on Monday morning.



Luckily, the doctors are keeping her on the same team and trying to move her back to the same area we were in before we left the NICU. Her care is staying consistant and that's a beautiful thing!

Hopefully they'll figure out how to control her seizures again. Joe and I are much more hesitant to take her back home again after quite a scare yesterday. We'd like Maura to be with us for a good long while, and we certainly can't have any blue babies!

Thanks for thinking of us today! Please keep Maura in your prayers