A Neurological Goldmine - Maura

The team of neurologists just stopped by! We are 3 day seizure free AND the results from her MRI came back fine! Her temporal lobe is a little underdeveloped which is completely normal for her gestation. They are going to do the spinal tap in a little while, so they've kept her intubated just until that's done, and as soon as she comes off the sedation...They'll run the regular panel, which came back fine already over at Virtua just to retest, and they'll run the more extensive panel, which could take weeks. She will NOT stay here for weeks. They're lowering her dose of the phenobarbital, and hoping she stays seizure free again, though she'll still be on a low dose of it...They are just assuming her disorder can be classified as something called the Fifth Day Fits, where we never see it again after she's 28 days old. This is one of those rare cases where when they find nothing, it's a spectacular sign. They are finding NOTHING as of right now on the big tests...




So, here's how it goes, I may be able to nurse her as early as tonight. Obviously, we won't be here, which means I'll get to nurse her tomorrow! This is such incredible news to me! My baby is getting closer to coming home!


They want to make sure she's stable on the phenobarbital, eating well, her body is processing everything, the proteins and what not, and then...she'll be COMING HOME!