Things are Looking Up!
Well Hello There!
Today is day 33 here at CHOP. Really...that's a long time to spend in a hospital. That doesn't even include the 7 days that I spent at Virtua and the 5 that Maura spent there...It's been a very long spring for us. But things are looking up!
It might be 99 degrees out, but when I went to lunch, I sat in the sunshine for what might be the last time outside of Potbelly. I walked out of CHOP to head over there and passed not one, but two babies with NG tubes. I've done this walk like it's routine for days now. Potbelly has been my one guilty pleasure. It's my saving grace, my half hour of sunshine... It's the one and only thing I'll miss about CHOP.
The NG tube is my insurance policy. It's the tool that's going to help Maura grow. It won't be for long, but it's there...and I'm very reserved about people looking at her. It's a funny thing, because I share all these pictures of her with all of you. It doesn't remotely bother me that she's got a tube in her nose. It bothers me in a mama bear sort of way that anyone could even think about staring at her.
But it's going to be OK. Those babies I saw..it was a sign. Things are going to be OK!
Tomorrow we are slated to go home. I cross my fingers for Miss Maura, hoping and praying that her night is seizure free. She's been doing so well. Knock on wood. Let's hope the clouds are finally clearing for us!
Today is day 33 here at CHOP. Really...that's a long time to spend in a hospital. That doesn't even include the 7 days that I spent at Virtua and the 5 that Maura spent there...It's been a very long spring for us. But things are looking up!
It might be 99 degrees out, but when I went to lunch, I sat in the sunshine for what might be the last time outside of Potbelly. I walked out of CHOP to head over there and passed not one, but two babies with NG tubes. I've done this walk like it's routine for days now. Potbelly has been my one guilty pleasure. It's my saving grace, my half hour of sunshine... It's the one and only thing I'll miss about CHOP.
The NG tube is my insurance policy. It's the tool that's going to help Maura grow. It won't be for long, but it's there...and I'm very reserved about people looking at her. It's a funny thing, because I share all these pictures of her with all of you. It doesn't remotely bother me that she's got a tube in her nose. It bothers me in a mama bear sort of way that anyone could even think about staring at her.
But it's going to be OK. Those babies I saw..it was a sign. Things are going to be OK!
Tomorrow we are slated to go home. I cross my fingers for Miss Maura, hoping and praying that her night is seizure free. She's been doing so well. Knock on wood. Let's hope the clouds are finally clearing for us!
Labels: Maura Fern, NICU
posted by Caroline at
2:06 PM
0 Comments:
Post a Comment
Subscribe to Post Comments [Atom]
<< Home