Phenobarbital No More!

Today marks a milestone for us. Today, Maura got her last dose of phenobarbital. It was slow to come. 6 weeks ago, we were in the midst of our last bout of seizures...I wasn't sure if we'd make it to the last dose. I so confidently posted about it, and then we found ourselves falling into the abyss of more seizures that didn't seem to stop so easily. But we got them under control and stuck to our guns on the phenobarbital. Each week, slowly, we weaned her down dose by dose. Tonight was the last one.

The picture I share today shows two things. The dose on the left is the dose she was receiving twice a day six weeks ago. 2.7 mLs ...The dose on the right is Maura's actual last dose...at .3 mLs...

It will be really bizarre to wake up tomorrow and not give it to her. She's been on it for all but 40 hours of her life! And now, it will no longer be a part of her. Of course, it has a half life, but I know it will be out of her system completely in just a few days...

So what does that mean for her? Hopefully less fuzz in her little head. I can't imagine what she's dealing with...she's a strong little cookie...she works hard. We'll get there in our own time...in the meantime, we do a lot of playing to get there!



Wish us luck as we venture into a new era. Every day, I worry that this is going to be it...the day she has breakthroughs. Each day makes it easier to convince myself. I hope we aren't let down this time!