6 Months Today!
Well hello there, 6 months! I hardly saw you coming!
Did you know that November is Epilepsy Awareness Month? It is...and of course, this year we are more aware than ever. Maura met two months seizure free on Halloween. It feels good! But I still wonder if one is lurking in the shadows - a relapse - and I hope never again.
So 6 months! Yeah! 6 months ago today, they told me I was having my baby. She (she!) was coming out of me. Her eviction notice being processed. A half a year ago! Where did the time go?
It's been a long six months. Between biweekly physical therapy appointments to help Maura catch up to her peers, to neurology appointments at CHOP, we've been busy!!! And where did all of this land us? Well..there are two meds standing - Keppra and Topamax. While I try to convince myself that she can come off them, I'm curious to see what Neurology has to say about everything in the coming week. Maura is behind developmentally. We knew she would be. It's really no surprise. I mean, really...she spent the first 6 weeks of her life sleeping more than she ever did in utero. Muchless while being drugged up and connected to too many wires to count, of course it will keep you down! But she's ever so slowly catching up. She loves to bear weight on her feet. She gets this proud little look on her face when she does it, it's so cute! She's not rolling. And only just last week did she giggle for the first time. Getting giggles ever since has been like pulling teeth. It's like she needs extra stimulation to do it! She's just a laid back gal! Her head control has gotten astronomically better in a month. She's tracking very well. She's actually starting to swat at toys and she'll take a toy from you if you put it in her hand and bring it to her mouth. While these seem like tiny milestones to some, they are huge for us. They've taken us a long time to get to! Maura is a talked too! She squeals and chatters all the time...nothing definitive, but I had no idea she'd be such a "talker"! She'll get there, slowly but surely.
In the meantime, please keep those less fortunate than us in your thoughts and prayers this month. Feel free to donate to the Epilepsy Foundation. This disease is a complex beast. The doctors don't know all that much about it, but they know hot to trigger certain types and how to control a lot of the seizures . Some folks aren't as lucky as we are. Some folks are dealing with seizures all the time, even with meds. Hopefully one day, nobody will have to sit in the NICU for 35 days wondering if they'll ever get to take their baby home as they wait for these young seizures to stop. Someday they'll know how to stop them - for good.
Did you know that November is Epilepsy Awareness Month? It is...and of course, this year we are more aware than ever. Maura met two months seizure free on Halloween. It feels good! But I still wonder if one is lurking in the shadows - a relapse - and I hope never again.
So 6 months! Yeah! 6 months ago today, they told me I was having my baby. She (she!) was coming out of me. Her eviction notice being processed. A half a year ago! Where did the time go?
It's been a long six months. Between biweekly physical therapy appointments to help Maura catch up to her peers, to neurology appointments at CHOP, we've been busy!!! And where did all of this land us? Well..there are two meds standing - Keppra and Topamax. While I try to convince myself that she can come off them, I'm curious to see what Neurology has to say about everything in the coming week. Maura is behind developmentally. We knew she would be. It's really no surprise. I mean, really...she spent the first 6 weeks of her life sleeping more than she ever did in utero. Muchless while being drugged up and connected to too many wires to count, of course it will keep you down! But she's ever so slowly catching up. She loves to bear weight on her feet. She gets this proud little look on her face when she does it, it's so cute! She's not rolling. And only just last week did she giggle for the first time. Getting giggles ever since has been like pulling teeth. It's like she needs extra stimulation to do it! She's just a laid back gal! Her head control has gotten astronomically better in a month. She's tracking very well. She's actually starting to swat at toys and she'll take a toy from you if you put it in her hand and bring it to her mouth. While these seem like tiny milestones to some, they are huge for us. They've taken us a long time to get to! Maura is a talked too! She squeals and chatters all the time...nothing definitive, but I had no idea she'd be such a "talker"! She'll get there, slowly but surely.
In the meantime, please keep those less fortunate than us in your thoughts and prayers this month. Feel free to donate to the Epilepsy Foundation. This disease is a complex beast. The doctors don't know all that much about it, but they know hot to trigger certain types and how to control a lot of the seizures . Some folks aren't as lucky as we are. Some folks are dealing with seizures all the time, even with meds. Hopefully one day, nobody will have to sit in the NICU for 35 days wondering if they'll ever get to take their baby home as they wait for these young seizures to stop. Someday they'll know how to stop them - for good.
Labels: epilepsy, Maura Fern
posted by Caroline at
7:07 AM
3 Comments:
she's beautiful. So thankful that she is doing so well and achieving so many milestones! I can't believe it's been 1/2 a year already. time really does fly.
I know! Think about Levi, that's 1/4 of a year that's just about slipped between your fingers! Imagine that!
Happy Halfyear, Maura!!!! <3
That's great on two months...really, really wonderful. I understand the feeling that it might pop up, but I pray she is over and past it - waitforit: that she's "grown out of it." :)
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